Job Posting 100439

Executive Director
Angelman Syndrome Foundation Canada
Work From Home - From Anywhere
closed 5 days ago (Fri, 12 Apr)
full time  •  $60,000 to $80,000 CAD Annual Salary



Angelman Syndrome Foundation Canada (ASFC) is a national organization (registered charity) dedicated to supporting individuals living with Angelman syndrome (AS), their families and others who care. The ASFC provides support services and access to resources to help families and care providers navigate through their journey with AS, including funding education and communication initiatives, family grants/scholarships, AS clinical network support, research, and community events. The ASFC is ran by a volunteer Board of Directors who dedicate their time and expertise to help increase the quality of life for individuals living with AS, their families and caregivers.




The ASFC has an opportunity for an Executive Director (ED) to join our team. The ED shall support the day-to-day operations of ASFC. Reporting to and receiving direction from the Board of Directors, the ED provides vision, leadership, and sound managerial skills to enable the ASFC to meet its strategic goals. This is a permanent, full-time position.


Key Responsibilities:


Operational Leadership

  • Reporting to the Board of Directors, the ED is accountable for the day-to-day operations of the ASFC.
  • In collaboration with the Board of Directors, develop and implement the Strategic Plan.
  • Build and oversee ASFC initiatives, including AS Clinic Network Expansion, management of the Family Fund, evolving the partnership with the ASF etc.
  • Assist in the financial performance and viability of ASFC.


  • Develop, implement, and monitor fundraising strategies at individual and corporate levels, both short and long term.
  • Lead fundraising efforts, campaigns, and donor recognition activities.
  • Recruits, trains, and motivates volunteers to perform certain duties to assist in fundraising initiatives, such as the annual ASFC Walk.

Advocacy & Outreach

  • Develop and manage relationships with new and existing community partners and organizations.
  • Develop, implement, and sustain a marketing plan which focuses on building the ASFC brand and extending outreach.
  • Develop and execute a social media plan and presence for ASFC via multiple channels, such as Facebook and Instagram

Core Competencies of ED Candidate:

  • A minimum of a bachelor’s degree in a related/valuable field of study is required.
  • Minimum of five years experience in non-for-profit management experience.
  • Transparent and high integrity leadership.
  • Budget management skills, including budget preparation, analysis, decision-making and reporting.
  • Strong organizational abilities including planning, delegating, program development and task facilitation.
  • Embody the ASFC vision in all interactions with staff, board members, volunteers, the AS Community, and donors.
  • Demonstrated experience of fundraising strategies and growing donor relationships unique to the non-for-profit sector.
  • Skills to collaborate with and motivate board members, fundraisers, and volunteers.
  • Strong written and oral communications skills.
  • Ability to interface and engage a diverse volunteer and donor groups.
  • Non-for-profit grant writing experience is considered an asset.

Essential Functions:


The ASFC Board believes that the ED should be an experienced leader who has the background and qualities that will permit him/her to achieve excellence in the following roles:


Advocate the Vision and Mission of ASFC: The ED will be the leader of our organization, inspiring and mobilizing every family, staff, scientist, clinician doctor – everywhere ASFC has a presence. The ED will make the Canadian AS Community stronger and support AS individuals and their families/care providers throughout the AS journey. Actively interact with and communicate with families, donors, staff, clinics, doctors, researchers etc. and be seen as an active and integral part of the AS Community. Develop and cultivate relationships with key stakeholders, while always upholding the highest standards of excellence.


Develop and Implement a Strategic Plan: Work effectively with the Board of Directors, the AS Community and other AS Non-for-profit Organizations to identify critical needs and develop a strategic roadmap focused on organizational strategies. Lead staff in the development and implementation of goals through an annual operating plan. Lead volunteers in aligning committees and their charts of work to support the strategic goals of ASFC.


Lead a Culture of Philanthropy: Effectively lead the organization to embrace a donor-centered atmosphere. Assure that everyone in the organization, from staff to the board chair, understands that philanthropy and fund development are critical to the organizational health and that everyone has a role in that process. Serve as the leader who supports the organization in its fundraising efforts by establishing a Fundraising Plan for how the organization will raise contributed dollars to support the charity’s initiatives and growth. Position ASFC as a charity of choice by instilling confidence, credibility and trust in the AS Community and donors.


Compensation Provided:                                                    

  • Annual Salary: $60,000 to $80,000 CAD

Application Process:


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