Volunteer Posting 1558

Board Member
Hydrocephalus Canada
Work From Home - From Anywhere
Virtual and in-person board meetings and Annual General Meeting
flexible / as needed
closes in 25 days (Wed, 15 May)

Hydrocephalus Canada (HC) is calling for nominations of candidates for the HC Board of Directors for 4 new Directors.  All Directors will be elected for a two-year term at our AGM starting September 2024. 


Our Mission, Vision & Purpose:


Hydrocephalus Canada is a charitable organization and leader in serving Canadians living with hydrocephalus and spina bifida for 51 years.


Our mission is connecting the spina bifida and hydrocephalus communities across Canada through services, support, education, awareness and research.


Our vision is a future without new diagnosis of spina bifida and/or hydrocephalus.


Our purpose is to inspire those impacted by the complex neurological conditions of hydrocephalus and spina bifida to experience their best life, including their family and caregivers. Hydrocephalus Canada is the trusted source for compassionate, progressive and innovative solutions that drive efforts to: 

  • Develop a Canadian strategy to increase awareness about hydrocephalus and spina bifida
  • Create solutions that support prevention, early and accurate diagnosis and access to appropriate treatment, advancement of new treatments and optimal outcomes
  • Develop, establish, enhance and maintain education and awareness resources and encourage inclusive supportive hydrocephalus and spina bifida communities
  • Fund impactful research

What We Need:

We are currently seeking qualified candidates from diverse backgrounds with an energetic spirit who enjoy the challenge of moving an organization forward. HC is looking for individuals who demonstrate excellence in their field of expertise, bringing a mix of strategic leadership skills, care and vision critical to due diligence and good governance. The candidates are also committed to supporting and enhancing service excellence for children, youth, adults and seniors impacted by hydrocephalus and/or spina bifida, including their families and caregivers.  


Directors of Hydrocephalus Canada meet 5-6 times a year, primarily through videoconference meetings. The Board is composed of an Executive of Chair, 1St Vice-Chair, 2nd Vice-Chair, Secretary, Treasurer and members at large.


Board members are expected to join a committee or working group. The time commitment varies, but is usually 1 hour, approximately 6 times a year. Hydrocephalus Canada also encourage our Board of Directors to make a personal financial gift annually as a sign of investment in the organization. To ensure that financial matters are not a barrier to participating on the Board, there is no minimum gift amount.

Priority areas of skills and expertise:

  • Not-for-Profit management;
  • Strategic planning and growth;
  • Governance and policy review;
  • Fundraising and Event Planning;
  • Communications/Media Relations;
  • Government Relations/Policy Design;
  • Digital technology;
  • Geography – anywhere in Canada, with particular interest in individuals from Atlantic & Western Canada.

Time Commitment & Involvement:

  • $25 annual membership fee.
  • 6-video/teleconference meetings, 1 in person if possible (AGM/Conference).
  • Participation on 1 Board Committee – HR/Finance & Administration, National Expansion, Fundraising and Marketing, Education and Programs. Meetings 4-6 per year, via videoconferencing.
  • Provide hands on support and leverage skills, expertise and contacts to provide staff with support needed to operationalize and execute strategic plans to serve the organization’s constituencies where required.
  • Directors are expected to attend and contribute points of view, make constructive suggestions and help drive decisions that benefit the organization’s mission and goals.
  • Directors are expected to be knowledgeable about the organization and the conditions.
  • Assist with personnel management as required.
  • Assist in fundraising efforts and initiatives if possible.
  • Attend Annual General Meeting in September and other special meetings as needed including some fundraising events.
  • Assume Board leadership roles when asked.
  • Directors are expected to enhance our public standing by actively promoting our mission and accomplishments to the public, and by means of personal contacts, assist in the cultivation of partnerships.
  • The Board welcomes representation from the hydrocephalus and spina bifida communities.




Hydrocephalus Canada holds directors and officer’s liability, commercial property and cyber insurance.

Hydrocephalus Canada promotes an inclusive and barrier-free environment.

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