Help strengthen care, support and hope for Canadians living with bone marrow failure diseases.

The Aplastic Anemia and Myelodysplasia Association of Canada (AAMAC) is seeking volunteer Board Directors from across Canada who want to help shape the future of patient support, education, advocacy and research for Canadians impacted by aplastic anemia (AA), myelodysplasia and Myelodysplastic Syndromes (MDS) and paroxysmal nocturnal hemoglobinuria (PNH).

AAMAC is a federally incorporated registered charity dedicated to building a seamless national support network for patients, families, caregivers, friends and healthcare providers affected by bone marrow failure diseases. In addition to patient education and support, AAMAC funds Canadian research focused on improving outcomes for those living with these rare and serious conditions.

This is a meaningful governance opportunity for leaders who want to contribute their experience, judgment and voice to a mission-driven national organization. This role is best suited for individuals who are prepared to contribute over multiple years. Board Directors help guide AAMAC’s strategic direction, strengthen organizational sustainability, support patient-focused programs, expand awareness across Canada and ensure the organization remains responsive to the needs of patients and their support networks.

While beneficial, candidates are not required to have prior board experience, a medical background or direct personal experience with bone marrow failure disease. AAMAC welcomes individuals who are thoughtful, collaborative, committed and prepared to contribute consistently.

The expected time commitment includes:

•       6–8 virtual board meetings per year

•       1 annual strategic retreat, held virtually or in person

•       Committee participation, approximately 3–4 hours per month

AAMAC is currently prioritizing candidates from Ontario, Quebec and British Columbia, although applicants from anywhere in Canada are welcome. 

Experience in any of the following areas would be considered an asset:

•       Nursing, clinical care or healthcare systems

•       Patient support, advocacy or community outreach

•       Financial management, accounting or audit

•       Nonprofit leadership

•       Fundraising, communications or stakeholder engagement

•       Bilingual proficiency in French and English

AAMAC supports a respectful, collaborative and mission-focused board culture. This is an opportunity to help strengthen a national organization serving patients and families facing rare, complex and life-changing diseases.